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Sexuality Based on the readings, identify at least 3 key issues faced related to sexuality for individuals with developmental disabilities and

 

Posting 9—Sexuality

  • Based on the readings, identify at least 3 key issues faced related to sexuality for individuals with developmental disabilities and discuss 2 related barriers to sexual health in this population.

Kelly, G. (2009)  Page 1 

Sexuality and Intellectual Disability –Resources & Reading List

By Grace Kelly  November 2009 

Resources:  For training and networking in the area of sexuality and intellectual disability (for people with intellectual disabilities, family members and staff) contact

• The Irish Sex Education Network (ISEN) –email: [email protected]; ph: 087- 6284538, website: http://www.isenonline.com/

For a comprehensive list and review of available sex education resources, see:

• Health Scotland (2008). Sexual Health and Relationships A Review of Resources for people with learning disabilities. http://www.healthscotland.com/uploads/documents/7819- AReviewOfResourcesforPeopleWithLearningDisabilities.pdf

• Also forthcoming, Irish Sex Education Network (ISEN) online database of resources http://www.isenonline.com/

For a list of resources in the area of people with intellectual disabilities as parents, see:

• Working Together with Parents Network (Supporting parents with learning disabilities and their children) http://www.bristol.ac.uk/norahfry/right-support/

• Through the Looking Glass http://lookingglass.org/index.php For resources for working with gay men and women with intellectual disabilities, see:

• Online resources of the: http://www.bristol.ac.uk/norahfry/resources/online/#sexuality

Kelly, G. (2009)  Page 2 

Reading list:  This reading list covers:

• Attitudes, experiences & aspirations (of society, families, staff & people with intellectual disabilities),

• Sexual knowledge • Sex education, • Sexual health, • Sexual abuse, • Gender, • Sexual orientation, • Marriage, • Parenting, • Facilitated/ PA assisted sexuality, • Training needs, • Policy, • Capacity to consent, • Legislation, • Research and • Theory.

Abbott, D. & Burns, J. (2007). What’s love got to do with it? The experiences of lesbian, gay and bisexual people with intellectual disabilities and the views of the staff that support them. Sexuality Research and Social Policy, University of California Press, 4 (1), 27-39.

Abbott, D. & Howarth, J. (2007). Still Off-Limits? Staff Views on Supporting Gay, Lesbian and Bisexual People with Intellectual Disabilities to Develop Sexual and Intimate Relationships? Journal of Applied Research in Intellectual Disabilities, 20(2), 116-126.

Allen, M. & Seery, D. (2007). The current status of relationships and sexuality education practice for people with an intellectual disability in Ireland. Dublin: Irish Sex Education Network.

Ames, T. R. (1995) Perspectives: Inclusionary standard for determining sexual consent for individuals with developmental disabilities. Mental Retardation, Aug 1995, 264 -268.

Anderson, P. & Kitchin, R. (2000). Disability, space and sexuality: access to family planning services. Social Science & Medicine, 51(8), 1163-1173.

Archibald, J., Gillespie, S., Maloney, A., Moore, B., O'Hara, C., Scanlon, C. et al. (2007). The Management of Menopause for Women with Intellectual Disabilities. Frontline, Spring, No. 69.

Kelly, G. (2009)  Page 3 

Aunos, M. & Feldman, A.A. (2002). Attitudes towards sexuality, sterilization and parenting rights of persons with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15(4), 285-296.

Bambara, L.M. & Brantlinger, E. (2002). Toward a healthy sexual life: An introduction to the special series on issues of sexuality for people with developmental disabilities. Research and Practice for Persons with Severe Disabilities, 27(1), 5-7.

Bazzo, G., Nota, L., Soresi, S, Ferrari, L. & Minnes, P. (2007). Attitudes of Social Service Providers toward the Sexuality of Individuals with Intellectual Disability. Journal of Applied Research in Intellectual Disabilities, 20(2), 110-115.

Bell, D.M. & Cameron, L. (2003). The assessment of the sexual knowledge of a person with a severe learning disability and a severe communication disorder. British Journal of Learning Disabilities, 31(3), 123-129.

Blanchett, W.J. & Wolfe, P.S. (2002). A review of sexuality education curricula: Meeting the sexuality education needs of individuals with moderate and severe intellectual disabilities. Research and Practice for Persons with Severe Disabilities, 27(1), 43-57.

Block, P. (2000). Sexuality, fertility and danger: twentieth-century images of women with cognitive disabilities. Sexuality and Disability, 18(4), 239-254.

Block, P. (2002). Introduction to the Special Issue: Parents with disabilities. Sexuality and Disability, 20(1), p.3-5.

Block, P. (2002). Sexuality, parenthood & cognitive disability in Brazil. Sexuality and Disability, 20(1), p7-27.

Bonnie, S. (2002). Facilitated Sexual Expression in the Independent Living Movement in Ireland. http://www.independentliving.org/docs6/bonnie200208.html

Booth, T. & Booth, W. (1994). Parenting Under Pressure: Mothers and Fathers with Learning Difficulties. Buckingham: Open University Press.

Booth, T. & Booth, W. (1998). Growing Up with Parents who have Learning Difficulties. London: Routledge.

Booth, T. & Booth, W. (1999). Parents Together: action research and advocacy support for parents with learning difficulties. Health & Social Care in the Community, 7(6), 464-474.

Booth, T. & Booth, W. (2000). Against the odds: Growing up with parents who have learning difficulties. Mental Retardation, 38(1), 1-14. Feb 2000.

Booth, T. & Booth, W. (2002). Men in the lives of mothers with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15(3), 187- 199.

Kelly, G. (2009)  Page 4 

Booth, W. & Booth, T. (2004). A Family at Risk: Multiple Perspectives on Parenting and Child Protection. British Journal of Learning Disabilities, 32(1), 9- 15.

Booth, W. (2000). Sexuality and women with learning disabilities. British Journal of Social Work, 30(1), 127-128.

Brown, H. (1994). ‘An Ordinary Sexual Life?’: a review of the normalisation principle as it applies to the sexual options of people with learning disabilities. Disability & Society, 9(2), p. 123-140.

Brown, H. & Craft, A. (1992). Working with the Unthinkable. London: Family Planning Association.

Brown, H. & Turk, V. (1992). Defining sexual abuse as it affects adults with learning disabilities. Mental Handicap, 8(1), 3-24.

Brown, H., Hunt, N. & Stein J. (1995). ‘Alarming but very necessary’: Working with staff groups around the sexual abuse of adults with learning disabilities. Journal of Intellectual Disability Research, 38, 393-412.

Brown, H., Stein, J. & Turk, V. (1995). The sexual abuse of adults with learning disabilities: Report of a second two-year incidence survey. Mental Handicap Research, 8(1), 3-24.

Browne, J. & Russell, S. (2005). My Home, Your Workplace: People with Physical Disability Negotiate their Sexual Health without Crossing Professional Boundaries. Disability & Society, 20(4), 375-388.

Caffrey, S. (1992). S. A. M. & S. U. E. Sexual Attitudes Measured & Sexual Understanding Explored. Submitted in fulfilment of the requirements for the degree of Doctor of Philosophy (Ph.D). Dept of Psychology, Trinity College Dublin: Unpublished Ph.D. thesis.

Caffrey, S. (2004). Adult relationships and sexuality. In Walsh, P.N. & Gash, H. Lives and Times: Practice, Policy and People with Disabilities. Dublin: Rathdown Press.

Cambridge, P. & McCarthy, M. (1997). Developing and implementing sexual policy for a learning disability provider service. Health and Social Care in the Community, 5(4), pp. 227-236. Subject: Policy

Cambridge, P. (1994). A practice and policy agenda for HIV and learning difficulties. British Journal of Learning Disabilities 22, 134–139.

Cambridge, P. (1995). HIV risk and men with learning disabilities. Nursing Times, 91,11.

Cambridge, P. (1996). The Sexuality and Sexual Rights of People with Learning Disabilities: Considerations for Staff and Carers. Plymouth: British Institute of Learning Disabilities (BILD).

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Cambridge, P. (1997a). At whose risk: priorities and conflicts for policy development in HIV and intellectual disability. Journal of Applied Research in Intellectual Disabilities 10, 83–104.

Cambridge, P. (1997b). How far to gay? The politics of HIV in learning disability. Disability and Society 12, 427–453.

Cambridge, P. (1997c). HIV, Sex and Disability: A Staff Training and Sex Education Resource for Working on HIV and Men with Learning Disabilities Who Have Sex with Men. Pavilion Publishing, Brighton.

Campion M.J. (1990). Reproductive and contraceptive considerations for women with physical disabilities: The Baby Challenge. London, Routledge.

Carson, D. (1987). A case for castration, m’luds? The Health Service Journal, 97, May, 354-354.

Carson, D. (1989). Sterilisation: whose body is it anyway? Health Service Journal, 99, January, 130-130.

Cheng M. M. & Udry R. (2005). Sexual experiences of adolescents with low cognitive abilities in the US. Journal of Developmental and Physical Disabilities 17, 155– 72.

Chivers, J. and Mathieson, S. (2000). "Training in Sexuality and Relationships: An Australian Model" Sexuality and Disability. 18(1), p 73-80.

Christian, L., Stinson, J. & Dotson, L.A. (2001). Staff values regarding the sexual expression of women with developmental disabilities. Sexuality and Disability, 19(4), 283-291.

Clements, J., Clare, I. & Ezelle, L.A. (1995). Real men, real women, real lives – Gender issues in learning disabilities and challenging behaviour. Disability and Society, 10 (4), p 425-435.

Conneally, S. (1988). Developing the Sexuality of People with a Handicap. In McConkey, R. & Mc Ginley, P. (eds), Concepts and Controversies in Services for People with Mental Handicap. Ireland: Woodlands Centre Galway & St Michael’s House Dublin.

Cooney, T. (1989). Sterilisation and the mentally handicapped. Dublin University Law Journal, Vol. 2.

Craft, A. (1994). Practice issues in Sexuality and Learning Disabilities. London: Routledge. Subject: Sexuality.

Craft, A. (1987). Mental handicap and sexuality: Issues and perspectives. Tunbridge Wells: Costello.

Craft, A. & Craft, M. (1978). Sex and the Mentally Handicapped. London: Routledge & Kegan Paul.

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Craft, A. & Craft, M. (1979). Handicapped Married Couples. London: Routledge & Keegan Paul.

Craft, A. & Craft, M. (1983). Sex education and counselling for mentally handicapped people. Tunbridge Wells: Costello.

Cuskelly, M & Bryde, R. (2004). Attitudes towards the sexuality of adults with an intellectual disability: parents, support staff, and a community sample. Journal of Intellectual & Developmental Disability, 29(3), 255-265.

De Rossa, N. (1994). An Investigation of the Socio-sexual Knowledge Needs and Experiences of Adults with Mild and Moderate Mental Handicaps. Unpublished dissertation submitted in part requirement for the degree of Master of Science in Clinical Psychology. Belfast: School of Psychology, Queens University.

Dixon, H. & Craft, A. (1992). Picture Yourself. Learning Development Aids, Cambridge.

Dotson, L.A. Stinson, J. & Christian, L. (2003). "People tell me I can't have sex": Women with disabilities share their personal perspectives on health care, sexuality, and reproductive rights. Women & Therapy, 26(3-4), 195-209.

Drummond, E. (2006). Attitudes towards sexuality: A pilot study in Ireland. Learning Disability Practice, 9(4), 28-34.

Drummond, E. (2006). Supporting Sexuality – Acknowledging Rights: Practice and Professional Issues for Working with People with Intellectual Disability. Frontline, 67 (Autumn), 12-13.

Dukes E. & McGuire B. E. (2009). Enhancing capacity to make sexuality-related decisions in people with an intellectual disability. Journal of Intellectual Disability Research 53, 727–34.

Earle, S. (1999). Facilitated Sex and the Concept of Sexual Need: Disabled Students and their Personal Assistants. Disability & Society, 14(3), 309–323.

Egan, R. & O’Dea, E. (2002). Freedom. Relationship & Sexuality Education: A Resource Book for Teachers & Facilitators of Students with a Mild Learning Disability. Limerick: Brothers of Charity Services Limerick

Ehlers-Flint, M.L. (2002). Parenting perceptions and social supports of mothers with cognitive disabilities. Sexuality and Disability, 20(1), p.29-51.

Esterle, M., Munoz Sastre, M.T. & Mullet, E. (2008). Judging the Acceptability of Sexual Intercourse Among People with Learning Disabilities: French Laypeople’s Viewpoint. Sexuality and Disability, 26,219-227.

Evans, D.S. (2002). The Development of Personal Relationship and Sexuality Guidelines for People with Learning Disabilities. Final report prepared on behalf of Galway Association by the Dept of Public Health Western Health Board. Ireland: Western Health Board.

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Evans,D.S., McGuire, B.E., Healy, E. & Carley, S.N. (2009). Sexuality and personal relationships for people with an intellectual disability. Part II: staff and family carer perspectives. Journal of Intellectual Disability Research, 53(11), 913–921.

Everett, B. (2007). Ethically Managing Sexual Activity in Long-term Care. Sexuality and Disability, 25(1), 21–27.

Fegan, L., Rauch, A. & McCarthy, W.;(1993). Sexuality and People with Intellectual Disability. 2nd Ed. Australia: MacLennan & Petty Pty.

Finger, A. (1983). Disability & Reproductive Rights. Off Our Backs, 13(9), p.18. Washington: Oct 1983.

Finger, A. (1991). Past due: a story of disability, pregnancy and birth. Women's Press. London: Women’s Press Ltd.

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Foley S. (2009). Friendships and taboos: Research on sexual health promotion for people with mild to moderate intellectual disabilities in the 18-25 age range: Results of a consultation process and literature review. Cork, Health Promotion Department, Health Service Executive South.

Fyson, R. & Kitson, D. (2007). Independence or Protection – Does it have to be a Choice? Reflections on the Abuse of People with Learning Disabilities in Cornwall. Critical Social Policy, 27(3), 426-436.

Galea, J., Butler, J., Iacono, T. & Leighton, D. (2004). The assessment of sexual knowledge in people with intellectual disability. Journal of Intellectual & Developmental Disability, 29(4), 350-365.

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Graydon, C. (2006). Can Consent be Uninformed? Suggested Reform of Sexual Offences against Persons with Intellectual Disability. Australia: Centre for Social Change Research, Queensland University of Technology.

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Grieveo, A., McLaren, S. & Lindsay, W.R. (2007). An evaluation of research and training resources for the sex education of people with moderate to severe learning disabilities. British Journal of Learning Disabilities, 35(1), 30–37.

Griffiths, D.M., & Lunsky, J. (2003). Socio-Sexual Knowledge and Attitudes Assessment Tool – Revised (SSKAAT-R). Wooddale, Illinois: Stoelting Company.

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