15 May Sexuality Based on the readings, identify at least 3 key issues faced related to sexuality for individuals with developmental disabilities and
- Based on the readings, identify at least 3 key issues faced related to sexuality for individuals with developmental disabilities and discuss 2 related barriers to sexual health in this population.
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Sexuality and Intellectual Disability –Resources & Reading List
By Grace Kelly November 2009
Resources: For training and networking in the area of sexuality and intellectual disability (for people with intellectual disabilities, family members and staff) contact
• The Irish Sex Education Network (ISEN) –email: [email protected]; ph: 087- 6284538, website: http://www.isenonline.com/
For a comprehensive list and review of available sex education resources, see:
• Health Scotland (2008). Sexual Health and Relationships A Review of Resources for people with learning disabilities. http://www.healthscotland.com/uploads/documents/7819- AReviewOfResourcesforPeopleWithLearningDisabilities.pdf
• Also forthcoming, Irish Sex Education Network (ISEN) online database of resources http://www.isenonline.com/
For a list of resources in the area of people with intellectual disabilities as parents, see:
• Working Together with Parents Network (Supporting parents with learning disabilities and their children) http://www.bristol.ac.uk/norahfry/right-support/
• Through the Looking Glass http://lookingglass.org/index.php For resources for working with gay men and women with intellectual disabilities, see:
• Online resources of the: http://www.bristol.ac.uk/norahfry/resources/online/#sexuality
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Reading list: This reading list covers:
• Attitudes, experiences & aspirations (of society, families, staff & people with intellectual disabilities),
• Sexual knowledge • Sex education, • Sexual health, • Sexual abuse, • Gender, • Sexual orientation, • Marriage, • Parenting, • Facilitated/ PA assisted sexuality, • Training needs, • Policy, • Capacity to consent, • Legislation, • Research and • Theory.
Abbott, D. & Burns, J. (2007). What’s love got to do with it? The experiences of lesbian, gay and bisexual people with intellectual disabilities and the views of the staff that support them. Sexuality Research and Social Policy, University of California Press, 4 (1), 27-39.
Abbott, D. & Howarth, J. (2007). Still Off-Limits? Staff Views on Supporting Gay, Lesbian and Bisexual People with Intellectual Disabilities to Develop Sexual and Intimate Relationships? Journal of Applied Research in Intellectual Disabilities, 20(2), 116-126.
Allen, M. & Seery, D. (2007). The current status of relationships and sexuality education practice for people with an intellectual disability in Ireland. Dublin: Irish Sex Education Network.
Ames, T. R. (1995) Perspectives: Inclusionary standard for determining sexual consent for individuals with developmental disabilities. Mental Retardation, Aug 1995, 264 -268.
Anderson, P. & Kitchin, R. (2000). Disability, space and sexuality: access to family planning services. Social Science & Medicine, 51(8), 1163-1173.
Archibald, J., Gillespie, S., Maloney, A., Moore, B., O'Hara, C., Scanlon, C. et al. (2007). The Management of Menopause for Women with Intellectual Disabilities. Frontline, Spring, No. 69.
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Aunos, M. & Feldman, A.A. (2002). Attitudes towards sexuality, sterilization and parenting rights of persons with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15(4), 285-296.
Bambara, L.M. & Brantlinger, E. (2002). Toward a healthy sexual life: An introduction to the special series on issues of sexuality for people with developmental disabilities. Research and Practice for Persons with Severe Disabilities, 27(1), 5-7.
Bazzo, G., Nota, L., Soresi, S, Ferrari, L. & Minnes, P. (2007). Attitudes of Social Service Providers toward the Sexuality of Individuals with Intellectual Disability. Journal of Applied Research in Intellectual Disabilities, 20(2), 110-115.
Bell, D.M. & Cameron, L. (2003). The assessment of the sexual knowledge of a person with a severe learning disability and a severe communication disorder. British Journal of Learning Disabilities, 31(3), 123-129.
Blanchett, W.J. & Wolfe, P.S. (2002). A review of sexuality education curricula: Meeting the sexuality education needs of individuals with moderate and severe intellectual disabilities. Research and Practice for Persons with Severe Disabilities, 27(1), 43-57.
Block, P. (2000). Sexuality, fertility and danger: twentieth-century images of women with cognitive disabilities. Sexuality and Disability, 18(4), 239-254.
Block, P. (2002). Introduction to the Special Issue: Parents with disabilities. Sexuality and Disability, 20(1), p.3-5.
Block, P. (2002). Sexuality, parenthood & cognitive disability in Brazil. Sexuality and Disability, 20(1), p7-27.
Bonnie, S. (2002). Facilitated Sexual Expression in the Independent Living Movement in Ireland. http://www.independentliving.org/docs6/bonnie200208.html
Booth, T. & Booth, W. (1994). Parenting Under Pressure: Mothers and Fathers with Learning Difficulties. Buckingham: Open University Press.
Booth, T. & Booth, W. (1998). Growing Up with Parents who have Learning Difficulties. London: Routledge.
Booth, T. & Booth, W. (1999). Parents Together: action research and advocacy support for parents with learning difficulties. Health & Social Care in the Community, 7(6), 464-474.
Booth, T. & Booth, W. (2000). Against the odds: Growing up with parents who have learning difficulties. Mental Retardation, 38(1), 1-14. Feb 2000.
Booth, T. & Booth, W. (2002). Men in the lives of mothers with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15(3), 187- 199.
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Booth, W. & Booth, T. (2004). A Family at Risk: Multiple Perspectives on Parenting and Child Protection. British Journal of Learning Disabilities, 32(1), 9- 15.
Booth, W. (2000). Sexuality and women with learning disabilities. British Journal of Social Work, 30(1), 127-128.
Brown, H. (1994). ‘An Ordinary Sexual Life?’: a review of the normalisation principle as it applies to the sexual options of people with learning disabilities. Disability & Society, 9(2), p. 123-140.
Brown, H. & Craft, A. (1992). Working with the Unthinkable. London: Family Planning Association.
Brown, H. & Turk, V. (1992). Defining sexual abuse as it affects adults with learning disabilities. Mental Handicap, 8(1), 3-24.
Brown, H., Hunt, N. & Stein J. (1995). ‘Alarming but very necessary’: Working with staff groups around the sexual abuse of adults with learning disabilities. Journal of Intellectual Disability Research, 38, 393-412.
Brown, H., Stein, J. & Turk, V. (1995). The sexual abuse of adults with learning disabilities: Report of a second two-year incidence survey. Mental Handicap Research, 8(1), 3-24.
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Cambridge, P. (1995). HIV risk and men with learning disabilities. Nursing Times, 91,11.
Cambridge, P. (1996). The Sexuality and Sexual Rights of People with Learning Disabilities: Considerations for Staff and Carers. Plymouth: British Institute of Learning Disabilities (BILD).
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Cambridge, P. (1997a). At whose risk: priorities and conflicts for policy development in HIV and intellectual disability. Journal of Applied Research in Intellectual Disabilities 10, 83–104.
Cambridge, P. (1997b). How far to gay? The politics of HIV in learning disability. Disability and Society 12, 427–453.
Cambridge, P. (1997c). HIV, Sex and Disability: A Staff Training and Sex Education Resource for Working on HIV and Men with Learning Disabilities Who Have Sex with Men. Pavilion Publishing, Brighton.
Campion M.J. (1990). Reproductive and contraceptive considerations for women with physical disabilities: The Baby Challenge. London, Routledge.
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Chivers, J. and Mathieson, S. (2000). "Training in Sexuality and Relationships: An Australian Model" Sexuality and Disability. 18(1), p 73-80.
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Craft, A. & Craft, M. (1979). Handicapped Married Couples. London: Routledge & Keegan Paul.
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Dotson, L.A. Stinson, J. & Christian, L. (2003). "People tell me I can't have sex": Women with disabilities share their personal perspectives on health care, sexuality, and reproductive rights. Women & Therapy, 26(3-4), 195-209.
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